DOI work
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crossref
Margaret G. Janse van Rensburg, Elisa Niunin, Alexia Ostrolenk, Sydney Arsenault, Anja Wilson, Courtney Weaver, Valérie Courchesne, Robert M. Hock
(2026).
Understanding the Use of Community Advisory Boards in Autism Research: A Scoping Review.
Review Journal of Autism and Developmental Disorders.
Springer Science and Business Media LLC.
- Publication date
-
10 Sep 2026
- Identifier
-
10.1007/s40489-026-00590-w
- Authors
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Margaret G. Janse van Rensburg,
Elisa Niunin,
Alexia Ostrolenk,
Sydney Arsenault,
Anja Wilson,
Courtney Weaver,
Valérie Courchesne,
Robert M. Hock
- Source
- Review Journal of Autism and Developmental Disorders
- Reference type
- article
- Publisher
- Springer Science and Business Media LLC
- Metadata source
- crossref
Abstract
Abstract Community engagement is increasingly promoted as a good practice in autism research, yet little is known about how Community Advisory Boards are used. This scoping review mapped the extent and nature of empirical literature on Community Advisory Boards in autism research. Five databases were searched, supplemented by reference list searching. Twenty-two studies met inclusion criteria. Most were published recently, conducted in the United States, and used mixed methods. Community Advisory Boards were rarely formally defined and were typically described functionally rather than conceptually. Most operated in consultative roles, with inconsistent reporting of recruitment, compensation, onboarding, communication, and influence on decision-making. Findings suggest that use of Community Advisory Boards in autism research is expanding but remains conceptually and methodologically underdeveloped.
Study authors in this cited reference