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Timothy C. Nielsen, Natasha Nassar, Kelsie A. Boulton, Adam J. Guastella, Samantha J. Lain
(2024).
Estimating the Prevalence of Autism Spectrum Disorder in New South Wales, Australia: A Data Linkage Study of Three Routinely Collected Datasets.
Journal of Autism and Developmental Disorders, 54(4), 1558-1566.
Springer Science and Business Media LLC.
- Publication date
-
18 Jan 2023
- Identifier
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10.1007/s10803-022-05887-3
- Authors
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Timothy C. Nielsen,
Natasha Nassar,
Kelsie A. Boulton,
Adam J. Guastella,
Samantha J. Lain
- Source
- Journal of Autism and Developmental Disorders
- Details
- 54(4), 1558-1566
- Reference type
- article
- Publisher
- Springer Science and Business Media LLC
- Metadata source
- crossref
Abstract
Abstract Routinely collected data help estimate the prevalence of autism spectrum disorder (ASD) in jurisdictions without active autism surveillance. We created a population-based cohort of 1,211,834 children born in 2002–2015 in New South Wales, Australia using data linkage. Children with ASD were identified in three datasets – disability services, hospital admissions, and ambulatory mental health data. The prevalence of ASD in the cohort was 1.3% by age 12 and prevalence at age 6 increased an average of 4.1% per year (95% Confidence Interval, 3.3%, 4.8%). Most children with ASD were identified in disability services data (87%), although data linkage identified 1,711 additional cases that were more likely female, older at first contact, and living in major cities and less disadvantaged areas.
Study authors in this cited reference