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Georgina Edwards, Joanne Tarver, Lauren Shelley, Megan Bird, Jessica Hughes, Hayley Crawford, Jane Waite
(2023).
Utilising Interview Methodology to Inform the Development of New Clinical Assessment Tools for Anxiety in Autistic Individuals Who Speak Few or no Words.
Journal of Autism and Developmental Disorders, 53(6), 2328-2348.
Springer Science and Business Media LLC.
- Publication date
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18 Mar 2022
- Identifier
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10.1007/s10803-022-05509-y
- Authors
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Georgina Edwards,
Joanne Tarver,
Lauren Shelley,
Megan Bird,
Jessica Hughes,
Hayley Crawford,
Jane Waite
- Source
- Journal of Autism and Developmental Disorders
- Details
- 53(6), 2328-2348
- Reference type
- article
- Publisher
- Springer Science and Business Media LLC
- Metadata source
- crossref
Abstract
Abstract Autistic individuals with intellectual disability who speak few or no words are at high risk of anxiety but are underrepresented in research. This study aimed to describe the presentation of anxiety in this population and discuss implications for the development of assessments. Interviews were conducted with 21 parents/carers of autistic individuals and nine clinicians. Data were analysed using content analysis and interpretative phenomenological analysis. Anxiety behaviours described by parents/carers included increased vocalisation, avoidance and behaviours that challenge. Changes to routine were highlighted as triggering anxiety. Clinicians discussed the importance of identifying an individual’s baseline of behaviour, knowing an individual well and ruling out other forms of distress. This study raises considerations for early identification of anxiety and for subsequent support.
Study authors in this cited reference