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L. Casey White, J. Kiely Law, Amy M. Daniels, Jaimie Toroney, Brianna Vernoia, Sabrina Xiao, The SPARK Consortium, Pamela Feliciano, et al.
(2021).
Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort.
Journal of Autism and Developmental Disorders, 51(10), 3766-3773.
Springer Science and Business Media LLC.
- Publication date
-
2 Jan 2021
- Identifier
-
10.1007/s10803-020-04816-6
- Authors
-
L. Casey White,
J. Kiely Law,
Amy M. Daniels,
Jaimie Toroney,
Brianna Vernoia,
Sabrina Xiao,
The SPARK Consortium,
Pamela Feliciano,
Wendy K. Chung
- Source
- Journal of Autism and Developmental Disorders
- Details
- 51(10), 3766-3773
- Reference type
- article
- Publisher
- Springer Science and Business Media LLC
- Metadata source
- crossref
Abstract
Abstract The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented.
Study authors in this cited reference