Supplementary information files for "Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines"

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Nimbley, E., Maloney, E., Gillespie‐Smith, K., Sharpe, H., Buchan, K., Kettley, S., Bragg, J., Shepherd, A., Choat, B., Long, J., Whateley, I., Booth, O., Baker, J. A., Renton, N., Nuttal, E., Darley, H., Fidgin, L., Campbell, L., Suratwala, R.,..., & Duffy, F. (2026). Supplementary information files for "Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines" [Data set]. Loughborough University. https://doi.org/10.17028/rd.lboro.31078873.v1

Publication date: 1 Jan 2026 Added to AutiHub: 6 Jul 2026 Type: Dataset Article language: English
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Authors

Publication authors
28
Publication authors identified as autistic
1 / 28 (3.6%)
  1. Emy Nimbley
  2. Ellen Maloney *
  3. Karri Gillespie‐Smith
  4. Helen Sharpe
  5. Kyle Buchan
  6. Sarah Kettley
  7. Jessica Bragg
  8. Alison Shepherd
  9. Becky Choat
  10. Joseph Long
  1. Isla Whateley
  2. Ollie Booth
  3. Julie-Anne Baker
  4. Nix Renton
  5. Emily Nuttal
  6. Harriet Darley
  7. Lin Fidgin
  8. Laura Campbell
  9. RSTasha Suratwala
  10. Casper Temple
  1. Kayleigh MacDonald
  2. Sammi Carden
  3. Bryanna Lazich
  4. Jess Kerr‐Gaffney
  5. Michelle Sader
  6. Gordon D. Waiter
  7. Kate Tchanturia
  8. Fiona Duffy

Abstract

Supplementary files for article "Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines" There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this field, it is imperative that we actively engage in co-production of research, however there are currently no guidelines to support co-production with autistic people with eating disorders. This paper reports on best practice guidelines that were co-produced across a series of workshops bringing together autistic people with EDs, researchers, clinicians, third-sector organisations, and parents/carers. The guidelines are intended to be used as a foundation for future co-produced autism and ED research. By creating a trusted, ethical co-production relationship, we hope to generate more clinically meaningful and translatable research. © The Author(s), CC BY-NC-ND 4.0

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