Assessing the Reliability and Validity of the Catalight Family Wellbeing Scale in a Turkish Sample

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Turgut, S., Boz, E. S., Uğurlu, M., Sneed, L., & Pfingston, B. (2026). Assessing the Reliability and Validity of the Catalight Family Wellbeing Scale in a Turkish Sample. Family Relations, Article fare.70351. https://doi.org/10.1111/fare.70351

Publication date: 13 Aug 2026 Added to AutiHub: 21 Oct 2026 Type: Article Article language: English
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5
Publication authors identified as autistic
1 / 5 (20.0%)
  1. Sedat Turgut
  2. Esra Sözer Boz
  3. Mahir Uğurlu
  4. Lindsey Sneed
  5. Ben Pfingston *

Abstract

ABSTRACT Background Family well‐being is increasingly recognized as an important outcome in research and practice involving families of individuals with developmental disabilities, highlighting the need for valid assessment instruments. However, the Catalight Family Wellbeing Scale (CFWS) has only been validated in the United States, and evidence for its cross‐cultural applicability remains limited. Objective This study aimed to translate, culturally adapt, and evaluate the psychometric properties of the Turkish version of the CFWS among families of individuals with developmental disabilities. Methods The sample comprised 343 primary caregivers of individuals with developmental disabilities. The 15‐item CFWS was translated using a standardized procedure. Psychometric properties were evaluated using confirmatory factor analysis (CFA), internal consistency (Cronbach's α and McDonald's ω ), measurement invariance across caregiver gender, and convergent and discriminant validity analyses with the Beach Center Family Quality of Life Scale (BCFQOL) and the Depression Anxiety Stress Scales‐21 (DASS‐21). Results CFA supported the original three‐factor structure. Internal consistency was acceptable to excellent (Cronbach's α = 0.70–0.92; McDonald's ω = 0.71–0.92). Measurement invariance supported score comparability across caregiver gender. Expected positive associations with the BCFQOL and negative associations with the DASS‐21 supported convergent and discriminant validity. Conclusion The Turkish version of the CFWS is a valid and reliable instrument for assessing family well‐being among families of individuals with developmental disabilities. Implications/Recommendations The Turkish CFWS can be used in research and practice to assess family well‐being, monitor family‐centered interventions, and support service planning for families of individuals with developmental disabilities in Türkiye.

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96
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76
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20
0 / 96 (0.0%) cited references include at least one author identified as autistic.
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45 / 268 (16.8%) names are linked to an author already present in AutiHub. 223 / 268 (83.2%) names are not yet linked.
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Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 0 / 45 (0.0%). Distinct people identified as autistic: 0 / 263 (0.0%).
  1. Gardiner Emily , Grace Iarocci (2015). Family Quality of Life and ASD: The Role of Child Adaptive Functioning and Behavior Problems . Autism Research, 8(2), 199-213. Wiley.
    Type: Article DOI: 10.1002/aur.1442 OpenAlex: https://openalex.org/W1670331831
    Crossref OpenAlex
  2. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders, 5th Edition: DSM-5 . American Psychiatric Association.
    Type: Book DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917
    Crossref OpenAlex
  3. Debbie Spain , Jacqueline Sin , Eleni Paliokosta , Marie Furuta , Jonathan E Prunty , Trudie Chalder et al. (2017). Family therapy for autism spectrum disorders . Cochrane Database of Systematic Reviews, 2017(5), 11894. Wiley.
    Type: Article DOI: 10.1002/14651858.cd011894.pub2 OpenAlex: https://openalex.org/W1916582953
    Crossref OpenAlex
  4. American Psychiatric Association (2022). Diagnostic and Statistical Manual of Mental Disorders (Text Rev.) . American Psychiatric Association Publishing.
    Type: Book DOI: 10.1176/appi.books.9780890425787 OpenAlex: https://openalex.org/W4281687410
    Crossref OpenAlex
  5. Stacey Tomanik , Gerald E Harris , Jacqueline Hawkins (2004). The relationship between behaviours exhibited by children with autism and maternal stress . Journal of Intellectual & Developmental Disability, 29(1), 16-26. Informa UK Limited.
    Type: Article DOI: 10.1080/13668250410001662892 OpenAlex: https://openalex.org/W1971942537
    Crossref OpenAlex
  6. Mary I. Armstrong , Shelly Birnie-Lefcovitch , Michael T. Ungar (2005). Pathways Between Social Support, Family Well Being, Quality of Parenting, and Child Resilience: What We Know . Journal of Child and Family Studies, 14(2), 269-281. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10826-005-5054-4
    Crossref
  7. Nancy Miodrag , Robert M Hodapp (2010). Chronic stress and health among parents of children with intellectual and developmental disabilities . Current Opinion in Psychiatry, 23(5), 407-411. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/yco.0b013e32833a8796 OpenAlex: https://openalex.org/W1992806982
    Crossref OpenAlex
  8. Baker M. (1992). In Other Words: A Coursebook on Translation . In Other Words: A Coursebook on Translation.
    Type: Other
    Crossref
  9. A. Kamstra , A. A. J. van der Putten , C. Vlaskamp (2015). The Structure of Informal Social Networks of Persons with Profound Intellectual and Multiple Disabilities . Journal of Applied Research in Intellectual Disabilities, 28(3), 249-256. Wiley.
    Type: Article DOI: 10.1111/jar.12134 OpenAlex: https://openalex.org/W1994234517
    Crossref OpenAlex
  10. Mary J. Baker-Ericzen , Lauren Brookman-Frazee , Aubyn C. Stahmer (2005). Stress Levels and Adaptability in Parents of Toddlers with and without Autism Spectrum Disorders . Research and Practice for Persons with Severe Disabilities, 30(4), 194-204. SAGE Publications.
    Type: Article DOI: 10.2511/rpsd.30.4.194 OpenAlex: https://openalex.org/W2151235492
    Crossref OpenAlex
  11. Shivani Sharma , David Winter , Michelle McCarthy (2013). A Personal Construct Approach to Understanding Stress in Mothers of Children Diagnosed with Autism Spectrum Disorders . Journal of Constructivist Psychology, 26(1), 50-61. Informa UK Limited.
    Type: Article DOI: 10.1080/10720537.2013.732534 OpenAlex: https://openalex.org/W1997284289
    Crossref OpenAlex
  12. Jay Belsky (1984). The Determinants of Parenting: A Process Model . Child Development, 55(1), 83. Oxford University Press (OUP).
    Type: Article DOI: 10.1111/j.1467-8624.1984.tb00275.x OpenAlex: https://openalex.org/W2040027351
    Crossref OpenAlex
  13. Lisa A. Newland , Jarod T. Giger , Michael J. Lawler , Eliann R. Carr , Emily A. Dykstra , Soonhee Roh (2014). Subjective Well-Being for Children in a Rural Community . Journal of Social Service Research, 40(5), 642-661. Informa UK Limited.
    Type: Article DOI: 10.1080/01488376.2014.917450 OpenAlex: https://openalex.org/W2003629041
    Crossref OpenAlex
  14. Jan Blacher , Bruce L. Baker (2007). Positive Impact of Intellectual Disability on Families . American Journal on Mental Retardation, 112(5), 330. Informa UK Limited.
    Type: Article DOI: 10.1352/0895-8017(2007)112[0330:pioido]2.0.co;2 OpenAlex: https://openalex.org/W2150166636
    Crossref OpenAlex
  15. Fang Fang Chen (2007). Sensitivity of Goodness of Fit Indexes to Lack of Measurement Invariance . Structural Equation Modeling: A Multidisciplinary Journal, 14(3), 464-504. Informa UK Limited.
    Type: Article DOI: 10.1080/10705510701301834 OpenAlex: https://openalex.org/W2005532382
    Crossref OpenAlex
  16. Tim Cadman , Hanna Eklund , Deirdre Howley , Hannah Hayward , Hanna Clarke , James Findon et al. (2012). Caregiver Burden as People With Autism Spectrum Disorder and Attention-Deficit/Hyperactivity Disorder Transition into Adolescence and Adulthood in the United Kingdom . Journal of the American Academy of Child & Adolescent Psychiatry, 51(9), 879-888. Elsevier BV.
    Type: Article DOI: 10.1016/j.jaac.2012.06.017 OpenAlex: https://openalex.org/W2010533293
    Crossref OpenAlex
  17. Carter C. (2010). Raising Happiness: 10 Simple Steps for More Joyful Kids and Happier Parents . Raising Happiness: 10 Simple Steps for More Joyful Kids and Happier Parents.
    Type: Other
    Crossref
  18. Paula Fomby , Andrew J. Cherlin (2007). Family Instability and Child Well-Being . American Sociological Review, 72(2), 181-204. SAGE Publications.
    Type: Article DOI: 10.1177/000312240707200203 OpenAlex: https://openalex.org/W2038598031
    Crossref OpenAlex
  19. G. Cetinbakis , G. Bastug , E.T. Ozel-Kizil (2020). Factors contributing to higher caregiving burden in Turkish mothers of children with autism spectrum disorders . International Journal of Developmental Disabilities, 66(1), 46-53. Informa UK Limited.
    Type: Article DOI: 10.1080/20473869.2018.1478630 OpenAlex: https://openalex.org/W2805733680
    Crossref OpenAlex
  20. Amanda K. Ludlow , Charlotte Skelly , Poul Rohleder (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder . Journal of Health Psychology, 17(5), 702-711. SAGE Publications.
    Type: Article DOI: 10.1177/1359105311422955 OpenAlex: https://openalex.org/W2042011817
    Crossref OpenAlex
  21. Gordon W. Cheung , Roger B. Rensvold (2002). Evaluating Goodness-of-Fit Indexes for Testing Measurement Invariance . Structural Equation Modeling: A Multidisciplinary Journal, 9(2), 233-255. Informa UK Limited.
    Type: Article DOI: 10.1207/s15328007sem0902_5 OpenAlex: https://openalex.org/W2089871805
    Crossref OpenAlex
  22. Brian Cooper , Glynda J. Kinsella , Cliff Picton (2006). Development and initial validation of a family appraisal of caregiving questionnaire for palliative care . Psycho-Oncology, 15(7), 613-622. Wiley.
    Type: Article DOI: 10.1002/pon.1001 OpenAlex: https://openalex.org/W2047467205
    Crossref OpenAlex
  23. Nina C Chien , Rashmita S Mistry (2013). Geographic Variations in Cost of Living: Associations With Family and Child Well-Being . Child Development, 84(1), 209-225. Oxford University Press (OUP).
    Type: Article DOI: 10.1111/j.1467-8624.2012.01846.x
    Crossref
  24. Mian Wang , Roy Brown (2009). Family Quality of Life: A Framework for Policy and Social Service Provisions to Support Families of Children With Disabilities . Journal of Family Social Work, 12(2), 144-167. Informa UK Limited.
    Type: Article DOI: 10.1080/10522150902874842 OpenAlex: https://openalex.org/W2060487421
    Crossref OpenAlex
  25. Li‐tze Hu , Peter M. Bentler (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives . Structural Equation Modeling: A Multidisciplinary Journal, 6(1), 1-55. Informa UK Limited.
    Type: Article DOI: 10.1080/10705519909540118 OpenAlex: https://openalex.org/W2071666535
    Crossref OpenAlex
  26. Corbett B. A. (2014). Adolescence, Stress and Cortisol in Autism Spectrum Disorders . OA Autism, 1(1), 2.
    Type: Other
    Crossref
  27. Yvonne Rafferty , Kenneth W. Griffin , Dimitra Robokos (2010). Maternal depression and parental distress among families in the Early Head Start Research and Evaluation Project: Risk factors within the family setting . Infant Mental Health Journal, 31(5), 543-569. Wiley.
    Type: Article DOI: 10.1002/imhj.20271 OpenAlex: https://openalex.org/W2072488889
    Crossref OpenAlex
  28. Cummins R. A. (2005). Personal Wellbeing Index Intellectual Disability . Personal Wellbeing Index Intellectual Disability.
    Type: Other
    Crossref
  29. Kate Davis , Susana Gavidia-Payne (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities . Journal of Intellectual & Developmental Disability, 34(2), 153-162. Informa UK Limited.
    Type: Article DOI: 10.1080/13668250902874608 OpenAlex: https://openalex.org/W2083509781
    Crossref OpenAlex
  30. Sarah Dababnah , Susan L Parish (2016). Feasibility of an empirically based program for parents of preschoolers with autism spectrum disorder . Autism, 20(1), 85-95. SAGE Publications.
    Type: Article DOI: 10.1177/1362361314568900 OpenAlex: https://openalex.org/W2119431577
    Crossref OpenAlex
  31. A. Dabrowska , E. Pisula (2010). Parenting stress and coping styles in mothers and fathers of pre‐school children with autism and Down syndrome . Journal of Intellectual Disability Research, 54(3), 266-280. Wiley.
    Type: Article DOI: 10.1111/j.1365-2788.2010.01258.x OpenAlex: https://openalex.org/W2022320127
    Crossref
  32. Emily Dale , Andrew Jahoda , Fiona Knott (2006). Mothers' attributions following their child's diagnosis of autistic spectrum disorder . Autism, 10(5), 463-479. SAGE Publications.
    Type: Article DOI: 10.1177/1362361306066600 OpenAlex: https://openalex.org/W2098599769
    Crossref OpenAlex
  33. Ian Firth , Rachel Dryer (2013). The predictors of distress in parents of children with autism spectrum disorder . Journal of Intellectual & Developmental Disability, 38(2), 163-171. Informa UK Limited.
    Type: Article DOI: 10.3109/13668250.2013.773964 OpenAlex: https://openalex.org/W2120565485
    Crossref OpenAlex
  34. Naomi Davis , Alice S. Carter (2008). Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders: Associations with Child Characteristics . Journal of Autism and Developmental Disorders, 38(7), 1278-1291. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-007-0512-z OpenAlex: https://openalex.org/W2058714004
    Crossref
  35. Lisa A. Newland (2015). Family well‐being, parenting, and child well‐being: Pathways to healthy adjustment . Clinical Psychologist, 19(1), 3-14. Informa UK Limited.
    Type: Article DOI: 10.1111/cp.12059 OpenAlex: https://openalex.org/W2122528736
    Crossref OpenAlex
  36. Denise DuBois , Rebecca Renwick , Mushfika Chowdhury , Shauna Eisen , Debra Cameron (2020). Engagement in community life: perspectives of youths with intellectual and developmental disabilities on families’ roles . Disability and Rehabilitation, 42(20), 2923-2934. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2019.1576781 OpenAlex: https://openalex.org/W2936193657
    Crossref OpenAlex
  37. June Luong , Marian K. Yoder , Daryl Canham (2009). Southeast Asian Parents Raising a Child With Autism: A Qualitative Investigation of Coping Styles . The Journal of School Nursing, 25(3), 222-229. SAGE Publications.
    Type: Article DOI: 10.1177/1059840509334365 OpenAlex: https://openalex.org/W2124823831
    Crossref OpenAlex
  38. Greg J Duncan , Jeanne Brooks-Gunn (2000). Family Poverty, Welfare Reform, and Child Development . Child Development, 71(1), 188-196. Oxford University Press (OUP).
    Type: Article DOI: 10.1111/1467-8624.00133
    Crossref
  39. Robert J. Vandenberg , Charles E. Lance (2000). A Review and Synthesis of the Measurement Invariance Literature: Suggestions, Practices, and Recommendations for Organizational Research . Organizational Research Methods, 3(1), 4-70. SAGE Publications.
    Type: Article DOI: 10.1177/109442810031002 OpenAlex: https://openalex.org/W2130653485
    Crossref OpenAlex
  40. Annette M. Estes , Jeffrey Munson , Geraldine Dawson , Elizabeth Koehler , Xiao-Hua Zhou , Robert Abbott (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay . Autism, 13(4), 375-387. SAGE Publications.
    Type: Article DOI: 10.1177/1362361309105658 OpenAlex: https://openalex.org/W2165770244
    Crossref OpenAlex
  41. Michael J. MacKenzie , Eric Nicklas , Jeanne Brooks-Gunn , Jane Waldfogel (2011). Who spanks infants and toddlers? Evidence from the fragile families and child well-being study . Children and Youth Services Review, 33(8), 1364-1373. Elsevier BV.
    Type: Article DOI: 10.1016/j.childyouth.2011.04.007 OpenAlex: https://openalex.org/W2132665403
    Crossref OpenAlex
  42. Families Special Interest Research Group of IASSIDD (2014). Families Supporting a Child with Intellectual or Developmental Disabilities: The Current State of Knowledge . Journal of Applied Research in Intellectual Disabilities, 27(5), 420-430. Wiley.
    Type: Article DOI: 10.1111/jar.12078 OpenAlex: https://openalex.org/W4211255297
    Crossref OpenAlex
  43. Fons van de Vijver , Norbert K Tanzer (2004). Bias and equivalence in cross-cultural assessment: an overview . European Review of Applied Psychology, 54(2), 119-135. Elsevier BV.
    Type: Article DOI: 10.1016/j.erap.2003.12.004 OpenAlex: https://openalex.org/W2137711071
    Crossref OpenAlex
  44. Mark E. Feinberg , Marni L. Kan (2008). Establishing family foundations: Intervention effects on coparenting, parent/infant well-being, and parent-child relations. Journal of Family Psychology, 22(2), 253-263. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0893-3200.22.2.253
    Crossref
  45. Claes Fornell , David F. Larcker (1981). Evaluating Structural Equation Models with Unobservable Variables and Measurement Error . Journal of Marketing Research, 18(1), 39-50. SAGE Publications.
    Type: Article DOI: 10.1177/002224378101800104 OpenAlex: https://openalex.org/W4235678817
    Crossref OpenAlex
  46. Rebecca Giallo , Catherine E Wood , Rachel Jellett , Rachelle Porter (2013). Fatigue, wellbeing and parental self-efficacy in mothers of children with an Autism Spectrum Disorder . Autism, 17(4), 465-480. SAGE Publications.
    Type: Article DOI: 10.1177/1362361311416830 OpenAlex: https://openalex.org/W2172276237
    Crossref OpenAlex
  47. Lorena Francés , Javier Quintero , Alberto Fernández , Antoni Ruiz , Jessica Caules , Gabriella Fillon et al. (2022). Current state of knowledge on the prevalence of neurodevelopmental disorders in childhood according to the DSM-5: a systematic review in accordance with the PRISMA criteria . Child and Adolescent Psychiatry and Mental Health, 16(1), 27. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13034-022-00462-1 OpenAlex: https://openalex.org/W4220697706
    Crossref
  48. Ami Tint , Jonathan Weiss (2016). Family wellbeing of individuals with autism spectrum disorder: A scoping review . Autism, 20(3), 262-275. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315580442 OpenAlex: https://openalex.org/W2206594262
    Crossref OpenAlex
  49. Jocelyn Bessette Gorlin , Cynthia Peden McAlpine , Ann Garwick , Elizabeth Wieling (2016). Severe Childhood Autism: The Family Lived Experience . Journal of Pediatric Nursing, 31(6), 580-597. Elsevier BV.
    Type: Article DOI: 10.1016/j.pedn.2016.09.002 OpenAlex: https://openalex.org/W2528627850
    Crossref OpenAlex
  50. Jan Schmidt , Majda Schmidt , Ivan Brown (2017). Quality of Life Among Families of Children With Intellectual Disabilities: A Slovene Study . Journal of Policy and Practice in Intellectual Disabilities, 14(1), 87-102. Wiley.
    Type: Article DOI: 10.1111/jppi.12188 OpenAlex: https://openalex.org/W2564510065
    Crossref OpenAlex
  51. Jocelyn Bessette Gorlin (2019). Systemically Treating Autism: A Clinician's Guide for Empowering Families . In Systemically Treating Autism: A Clinician's Guide for Empowering Families (pp. 68). Routledge.
    Type: Book chapter DOI: 10.4324/9781315141831-9 OpenAlex: https://openalex.org/W2951037971
    Crossref OpenAlex
  52. Hakan SARIÇAM (2018). The Psychometric Properties of Turkish Version of Depression Anxiety Stress Scale-21 (DASS-21) in Community and Clinical Samples . Journal of Cognitive-Behavioral Psychotherapy and Research, 1. Kare Publishing.
    Type: Article DOI: 10.5455/jcbpr.274847 OpenAlex: https://openalex.org/W2782273884
    Crossref OpenAlex
  53. Sarah Gregor , Nicole Bruni , Petar Grkinic , Lindsey Schwartz , Aimee McDonald , Patricia Thille et al. (2018). Parents’ perspectives of physical activity participation among Canadian adolescents with Autism Spectrum Disorder . Research in Autism Spectrum Disorders, 48, 53-62. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2018.01.007 OpenAlex: https://openalex.org/W2793308886
    Crossref OpenAlex
  54. D. E. Gray (2006). Coping over time: the parents of children with autism . Journal of Intellectual Disability Research, 50(12), 970-976. Wiley.
    Type: Article DOI: 10.1111/j.1365-2788.2006.00933.x OpenAlex: https://openalex.org/W2079121206
    Crossref
  55. Nikita K. Hayden , Richard P. Hastings , Clare Kassa , Frances Danylec (2023). Subjective Poverty Moderates the Association Between Carer Status and Psychological Outcomes of Adult Siblings of People with Intellectual and Developmental Disabilities . Journal of Autism and Developmental Disorders, 53(3), 987-999. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-022-05520-3
    Crossref
  56. Tamar Heller , Catherine Keiling Arnold (2010). Siblings of Adults With Developmental Disabilities: Psychosocial Outcomes, Relationships, and Future Planning . Journal of Policy and Practice in Intellectual Disabilities, 7(1), 16-25. Wiley.
    Type: Article DOI: 10.1111/j.1741-1130.2010.00243.x OpenAlex: https://openalex.org/W2064879965
    Crossref
  57. Nathaniel Scherer , Ibone Verhey , Hannah Kuper (2019). Depression and anxiety in parents of children with intellectual and developmental disabilities: A systematic review and meta-analysis . PLOS ONE, 14(7), e0219888. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0219888 OpenAlex: https://openalex.org/W2966415305
    Crossref OpenAlex
  58. Renske Hoefman , Nalin Payakachat , Job van Exel , Karen Kuhlthau , Erica Kovacs , Jeffrey Pyne et al. (2014). Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol . Journal of Autism and Developmental Disorders, 44(8), 1933-45. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-014-2066-1 OpenAlex: https://openalex.org/W1964759515
    Crossref
  59. Kei Nomaguchi , Melissa A. Milkie (2020). Parenthood and Well‐Being: A Decade in Review . Journal of Marriage and Family, 82(1), 198-223. Wiley.
    Type: Article DOI: 10.1111/jomf.12646 OpenAlex: https://openalex.org/W2998208009
    Crossref OpenAlex
  60. Lesa Hoffman , Janet Marquis , Denise Poston , Jean Ann Summers , Ann Turnbull (2006). Assessing Family Outcomes: Psychometric Evaluation of the Beach Center Family Quality of Life Scale . Journal of Marriage and Family, 68(4), 1069-1083. Wiley.
    Type: Article DOI: 10.1111/j.1741-3737.2006.00314.x
    Crossref
  61. Heather Prime , Mark Wade , Dillon T. Browne (2020). Risk and resilience in family well-being during the COVID-19 pandemic. American Psychologist, 75(5), 631-643. American Psychological Association (APA).
    Type: Article DOI: 10.1037/amp0000660 OpenAlex: https://openalex.org/W3027390800
    Crossref OpenAlex
  62. Hofstede G. (2001). Culture's Consequences: Comparing Values, Behaviors, Institutions, and Organizations Across Nations . Culture's Consequences: Comparing Values, Behaviors, Institutions, and Organizations Across Nations.
    Type: Other
    Crossref
  63. Hao Fong Sit , Lei Huang , Kay Chang , Wai I Chau , Brian J Hall (2020). Caregiving burden among informal caregivers of people with disability . British Journal of Health Psychology, 25(3), 790-813. Wiley.
    Type: Article DOI: 10.1111/bjhp.12434 OpenAlex: https://openalex.org/W3030920075
    Crossref OpenAlex
  64. Deborah J. Morris-Rosendahl , Marc-Antoine Crocq (2020). Neurodevelopmental disorders—the history and future of a diagnosticconcept . Dialogues in Clinical Neuroscience, 22(1), 65-72. Informa UK Limited.
    Type: Article DOI: 10.31887/dcns.2020.22.1/macrocq OpenAlex: https://openalex.org/W3045023537
    Crossref OpenAlex
  65. International Wellbeing Group (2013). Personal Wellbeing Index Adults . Personal Wellbeing Index Adults.
    Type: Other
    Crossref
  66. Roy McConkey (2020). A Brief Measure of Parental Wellbeing for Use in Evaluations of Family-Centred Interventions for Children with Developmental Disabilities . Children, 7(9), 120. MDPI AG.
    Type: Article DOI: 10.3390/children7090120 OpenAlex: https://openalex.org/W3081546158
    Crossref OpenAlex
  67. Emily A. Iovino , Jacqueline Caemmerer , Sandra M. Chafouleas (2021). Psychological distress and burden among family caregivers of children with and without developmental disabilities six months into the COVID-19 pandemic . Research in Developmental Disabilities, 114, 103983. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2021.103983 OpenAlex: https://openalex.org/W3160056227
    Crossref OpenAlex
  68. Jinhee Kim , Hyunlye Kim , Seojin Park , Jaeyong Yoo , Delgersuren Gelegjamts (2021). Mediating effects of family functioning on the relationship between care burden and family quality of life of caregivers of children with intellectual disabilities in Mongolia . Journal of Applied Research in Intellectual Disabilities, 34(2), 507-515. Wiley.
    Type: Article DOI: 10.1111/jar.12814 OpenAlex: https://openalex.org/W3087214612
    Crossref OpenAlex
  69. ITC (2017). The ITC Guidelines for Translating and Adapting Tests . The ITC Guidelines for Translating and Adapting Tests.
    Type: Other
    Crossref
  70. Christina N. Marsack-Topolewski , Preethy Sarah Samuel , Wassim Tarraf (2021). Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden . PLOS ONE, 16(1), e0244844. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0244844 OpenAlex: https://openalex.org/W3120550960
    Crossref OpenAlex
  71. Kline R. B. (2011). Principles and Practice of Structural Equation Modeling . Principles and Practice of Structural Equation Modeling.
    Type: Other
    Crossref
  72. Sarah Milosevic , Lucy Brookes‐Howell , Elizabeth Randell , Rhys Williams‐Thomas , Sue Delport , Monica Busse et al. (2022). Understanding the support experiences of families of children with autism and sensory processing difficulties: A qualitative study . Health Expectations, 25(3), 1118-1130. Wiley.
    Type: Article DOI: 10.1111/hex.13465 OpenAlex: https://openalex.org/W4221133904
    Crossref OpenAlex
  73. Siméon T. A. Lahaije , Jorien Luijkx , Aly Waninge , Annette A. J. van der Putten (2023). Well-Being of Families with a Child with Profound Intellectual and Multiple Disabilities . Research and Practice for Persons with Severe Disabilities, 48(2), 63-78. SAGE Publications.
    Type: Article DOI: 10.1177/15407969231173916 OpenAlex: https://openalex.org/W4378229065
    Crossref OpenAlex
  74. Lovibond S. H. (1995). Manual for the Depression Anxiety Stress Scales . Manual for the Depression Anxiety Stress Scales.
    Type: Other
    Crossref
  75. Wendy Machalicek , Russell Lang , Tracy Jane Raulston (2015). Training Parents of Children with Intellectual Disabilities: Trends, Issues, and Future Directions . Current Developmental Disorders Reports, 2(2), 110-118. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40474-015-0048-4
    Crossref
  76. Martinez J. (2003). What Counts: Measuring Indicators of Family Well‐Being‐Executive Summary Report . What Counts: Measuring Indicators of Family Well‐Being‐Executive Summary Report.
    Type: Other
    Crossref
  77. Sarah C. Masefield , Stephanie L. Prady , Trevor A. Sheldon , Neil Small , Stuart Jarvis , Kate E. Pickett (2020). The Caregiver Health Effects of Caring for Young Children with Developmental Disabilities: A Meta-analysis . Maternal and Child Health Journal, 24(5), 561-574. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10995-020-02896-5
    Crossref
  78. McKeown K. (2003). Family Well‐Being: What Makes a Difference? Family Well‐Being: What Makes a Difference?.
    Type: Other
    Crossref
  79. Vonnie C. McLoyd (1998). Socioeconomic disadvantage and child development. American Psychologist, 53(2), 185-204. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0003-066x.53.2.185 OpenAlex: https://openalex.org/W2016679285
    Crossref
  80. Meral B. F. (2013). Turkish Adaptation, Validity and Reliability Study of the Beach Center Family Quality of Life Scale . Education and Science, 38(170), 48.
    Type: Other
    Crossref
  81. S. Mulroy , L. Robertson , K. Aiberti , Helen Leonard , C. Bower (2008). The impact of having a sibling with an intellectual disability: parental perspectives in two disorders . Journal of Intellectual Disability Research, 52(3), 216-229. Wiley.
    Type: Article DOI: 10.1111/j.1365-2788.2007.01005.x
    Crossref
  82. Muthén L. K. (1998). Mplus User's Guide . Mplus User's Guide.
    Type: Other
    Crossref
  83. Muthén L. K. (2017). Mplus: Statistical Analysis With Latent Variables: User’s Guide (Version 8) . Mplus: Statistical Analysis With Latent Variables: User’s Guide (Version 8).
    Type: Other
    Crossref
  84. M. B. Olsson , C. P. Hwang (2001). Depression in mothers and fathers of children with intellectual disability . Journal of Intellectual Disability Research, 45(6), 535-543. Wiley.
    Type: Article DOI: 10.1046/j.1365-2788.2001.00372.x OpenAlex: https://openalex.org/W2002325062
    Crossref
  85. Cynthia Osborne , Sara McLanahan (2007). Partnership Instability and Child Well‐Being . Journal of Marriage and Family, 69(4), 1065-1083. Wiley.
    Type: Article DOI: 10.1111/j.1741-3737.2007.00431.x
    Crossref
  86. Parish S. L. (2001). Family Support for Families of Persons With Developmental Disabilities in the US: Status and Trends . Policy Research Brief, 12(2), 1.
    Type: Other
    Crossref
  87. Nancy E. Reichman , Hope Corman , Kelly Noonan (2008). Impact of Child Disability on the Family . Maternal and Child Health Journal, 12(6), 679-683. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10995-007-0307-z OpenAlex: https://openalex.org/W2089922347
    Crossref
  88. Roggman L. A. (2008). Developmental Parenting: A Guide for Early Childhood Practitioners . Developmental Parenting: A Guide for Early Childhood Practitioners.
    Type: Other
    Crossref
  89. T. Saloviita , M. Itälinna , E. Leinonen (2003). Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: a Double ABCX Model . Journal of Intellectual Disability Research, 47(4-5), 300-312. Wiley.
    Type: Article DOI: 10.1046/j.1365-2788.2003.00492.x
    Crossref
  90. Singh N. N. (2016). Handbook of Evidence‐Based Practices in Intellectual and Developmental Disabilities . Handbook of Evidence‐Based Practices in Intellectual and Developmental Disabilities, 1.
    Type: Other
    Crossref
  91. Lindsey Sneed , Ryan Paul Taylor , Ian Cook , Michelle Befi , Brianna Fitchett , Doreen Samelson et al. (2025). Initial Psychometric Properties of the Catalight Family Wellbeing Scale . Journal of Autism and Developmental Disorders, 55(3), 1067-1077. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-024-06254-0 OpenAlex: https://openalex.org/W4391446744
    Crossref
  92. Tabachnick B. G. (2013). Using Multivariate Statistics . Using Multivariate Statistics.
    Type: Other
    Crossref
  93. Triandis H. C. (1995). Individualism and Collectivism . Individualism and Collectivism.
    Type: Other
    Crossref
  94. Jonathan Weiss , Diana Tajik-Parvinchi , Andrea L. Maughan , Johanna Lake (2018). Family Wellness in Intellectual and Developmental Disabilities: a Balanced Approach . Current Developmental Disorders Reports, 5(3), 157-164. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40474-018-0145-2
    Crossref
  95. Wollny I. (2010). Can Government Measure Family Wellbeing? A Literature Review . Can Government Measure Family Wellbeing? A Literature Review.
    Type: Other
    Crossref
  96. Mooly M. C. Wong , Joyce L. C. Ma , P. S. Wan , Lily L. Xia , Michael H. T. Fok (2022). The Development and Validation of a Family Wellbeing Index for Hong Kong Chinese Families . Journal of Child and Family Studies, 31(6), 1683-1697. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10826-022-02281-6
    Crossref