Experience in action: Using art‐science activities to explore experiences of movement and the body in Parkinson's and autism
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerPoliakoff, E., Hall, A., Edmonds, E., Baimbridge, P., Copitch, G., Hanks, G., Sullivan, M., & Gowen, E. (2026). Experience in action: Using art‐science activities to explore experiences of movement and the body in Parkinson's and autism. Journal of Neuropsychology, Article jnp.70085. https://doi.org/10.1111/jnp.70085
This publication is integrated into AutiHub through:
Authors
Abstract
Abstract To explore possible new directions for sensorimotor research, we created experiential workshops for people with lived experience. Seven people with Parkinson's and six older autistic adults attended artist‐led drop‐in art‐science workshops, designed with advisors with lived experience. Open‐ended activities based on sensorimotor experiments provoked spontaneous and unexpected conversations between visitors and researchers about their experiences of movement and the body. We invite others to apply this informal playful approach, which was both enjoyable and effective in generating future research ideas.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Cited bibliography overview
These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 23 Oct 2026 01:01.
- With a DOI
- 19
- Without a DOI, from raw bibliography text
- 0
- References with detected author names
- 19 / 19 (100.0%)
- Without detected author names
- 0
- Without a structured title
- 0
- Without a stable identifier
- 0
- References with raw author names still to review
- 0
- References with external metadata lookup issues
- 0
- From DOI or external metadata
- 70
- From validated raw bibliography text
- 0
- Raw names already validated
- 0
- Raw names still to review
- 0
-
George A. Michael , Janick Naveteur (2011). The tickly homunculus and the origins of spontaneous sensations arising on the hands . Consciousness and Cognition, 20(3), 603-617. Elsevier BV.Crossref OpenAlex
-
Michele S. Y. Biddle , Andy Gibson , David Evans (2021). Attitudes and approaches to patient and public involvement across Europe: A systematic review . Health & Social Care in the Community, 29(1), 18-27. Wiley.Crossref OpenAlex
-
Lucia Ricciardi , Benedetta Demartini , Aikaterini Fotopoulou , Mark J. Edwards (2015). Alexithymia in Neurological Disease: A Review . The Journal of Neuropsychiatry and Clinical Neurosciences, 27(3), 179-187. American Psychiatric Association Publishing.Crossref OpenAlex
-
Karen Leneh Buckle *Autistic author. Learn more… , Kathy Leadbitter , Ellen Poliakoff , Emma Gowen (2021). “No way out except from external intervention”: First-hand accounts of autistic inertia . Frontiers in Psychology, 12, 1592. Frontiers Media SA.
-
Kristina Staley (2017). Changing what researchers 'think and do': Is this how involvement impacts on research? Research for All, 1(1), 158. UCL Press.Crossref OpenAlex
-
David Cardenas Cordova , Nick Kelly , Leo Rezayan (2025). A systematic literature review of the speculative design process and a proposed framework for speculative design . Design Science, 11. Cambridge University Press (CUP).Crossref OpenAlex
-
Lucy Frith (2023). Democratic Justifications for Patient Public Involvement and Engagement in Health Research: An Exploration of the Theoretical Debates and Practical Challenges . The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine, 48(4), 400-412. Oxford University Press (OUP).Crossref OpenAlex
-
Antony Hall , Ellen Poliakoff (2020). The Clay Hand Illusion and the Embodiment of Unfeasible Objects . Perception, 49(9), 988-993. SAGE Publications.Crossref OpenAlex
-
Emma Gowen , Louis Earley , Adeeba Waheed , Ellen Poliakoff (2023). From “one big clumsy mess” to “a fundamental part of my character.” Autistic adults’ experiences of motor coordination . PLOS ONE, 18(6), e0286753. Public Library of Science (PLoS).Crossref OpenAlex
-
Dawn C. Rose , Ellen Poliakoff , Rebecca Hadley , Ségolène M. R. Guérin , Michelle Phillips , William R. Young (2022). Levelling the Playing Field: The Role of Workshops to Explore How People With Parkinson's Use Music for Mood and Movement Management as Part of a Patient and Public Involvement Strategy . Frontiers in Rehabilitation Sciences, 3, 873216-873216. Frontiers Media SA.Crossref OpenAlex
-
Lydia Hickman , Jennifer L. Cook (2025). High rates of Parkinson’s disease diagnosis in the autistic population: True co-occurrence or a product of overlapping traits? Neuroscience & Biobehavioral Reviews, 176, 106261. Elsevier BV.Crossref OpenAlex
-
Megan Rose Readman , Trevor J. Crawford , Sally A. Linkenauger , Judith Bek , Ellen Poliakoff (2023). Motor imagery vividness and symptom severity in Parkinson's disease . Journal of Neuropsychology, 17(1), 180-192. Wiley.Crossref OpenAlex
-
Elizabeth Lewis , Donna M. Lloyd (2010). Embodied experience: A first-person investigation of the rubber hand illusion . Phenomenology and the Cognitive Sciences, 9(3), 317-339. Springer Science and Business Media LLC.Type: Article DOI: 10.1007/s11097-010-9154-2Crossref
-
Matthew Sullivan , Ellen Poliakoff (2023). Parkinson’s from inside out: emerging and unexpected benefits of a long-term partnership . Research for All, 7(1). UCL Press.Crossref OpenAlex
-
Kristin Liabo , Kate Boddy , Silvia Bortoli , Jenny Irvine , Heather Boult , Mary Fredlund et al. (2020). Public involvement in health research: what does ‘good’ look like in practice? Research Involvement and Engagement, 6(1). Springer Science and Business Media LLC.Type: Article DOI: 10.1186/s40900-020-0183-xCrossref
-
Torsten Ingemann Nielsen (1963). VOLITION: A NEW EXPERIMENTAL APPROACH . Scandinavian Journal of Psychology, 4(1), 225-230. Wiley.Type: Article DOI: 10.1111/j.1467-9450.1963.tb01326.xCrossref
-
Dawn P. Richards , Janelle Bowden , Patrick Gee , Alex Haagaard , Anita Kothari , Annette McKinnon et al. (2025). The ultimate power play in research - partnering with patients, partnering with power . Research Involvement and Engagement, 11(1). Springer Science and Business Media LLC.Type: Article DOI: 10.1186/s40900-025-00745-9Crossref
-
Daniele Romano , Gabriella Bottini , Angelo Maravita (2013). Perceptual effects of the mirror box training in normal subjects . Restorative Neurology and Neuroscience, 31(4), 373-386. SAGE Publications.Type: Article DOI: 10.3233/rnn-120273Crossref
-
Dirk-Wouter Smits , Karen van Meeteren , Martijn Klem , Mattijs Alsem , Marjolijn Ketelaar (2020). Designing a tool to support patient and public involvement in research projects: the Involvement Matrix . Research Involvement and Engagement, 6(1), 30. Springer Science and Business Media LLC.Crossref