Social Validity and the Consideration of Neurodiversity in Relation to Ethics

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Metadata sources used for this reference

OpenAlex Crossref BibTeX OpenCitations
Learn more about the sources used

Johnson, J. F. & Sadavoy, J. A. (2024). Social Validity and the Consideration of Neurodiversity in Relation to Ethics. In The International Library of Bioethics (pp. 151-163). Springer International Publishing. https://doi.org/10.1007/978-3-031-61565-8_12 · ISBN : 9783031615641 · Place of publication : Cham

Publication date: 1 Jan 2024 Added to AutiHub: 4 Oct 2026 Type: Book chapter Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)
  1. Joy F. Johnson *
  2. Jacob A. Sadavoy

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 28 Oct 2026 01:01.

Cited references
57
With a DOI
49
Without a DOI, from raw bibliography text
8
3 / 57 (5.3%) cited references include at least one author identified as autistic.
References with data to complete
9 / 57 (15.8%)
References with detected author names
50 / 57 (87.7%)
Without detected author names
7
Without a structured title
8
Without a stable identifier
8
References with raw author names still to review
6
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
233
From DOI or external metadata
233
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
9
63 / 233 (27.0%) names are linked to an author already present in AutiHub. 170 / 233 (73.0%) names are not yet linked.
Names linked to a person identified as autistic
4 / 233 (1.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 4 / 63 (6.3%). Distinct people identified as autistic: 3 / 207 (1.4%).
  1. Marsha B. Parsons , Dennis H. Reid , Erik Bentley , Amy Inman , L. Perry Lattimore (2012). Identifying Indices of Happiness and Unhappiness Among Adults With Autism: Potential Targets for Behavioral Assessment and Intervention . Behavior Analysis in Practice, 5(1), 15-25. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/bf03391814 OpenAlex: https://openalex.org/W178789237
    Crossref OpenAlex OpenCitations
  2. Donald M. Baer , Montrose M. Wolf , Todd R. Risley (1968). SOME CURRENT DIMENSIONS OF APPLIED BEHAVIOR ANALYSIS 1 . Journal of Applied Behavior Analysis, 1(1), 91-97. Wiley.
    Type: Article DOI: 10.1901/jaba.1968.1-91 OpenAlex: https://openalex.org/W2105527800
    Crossref OpenAlex OpenCitations
  3. Frans Derksen , Jozien Bensing , Antoine Lagro-Janssen (2013). Effectiveness of empathy in general practice: a systematic review . British Journal of General Practice, 63(606), e76-e84. Royal College of General Practitioners.
    Type: Article DOI: 10.3399/bjgp13x660814 OpenAlex: https://openalex.org/W2136009731
    Crossref OpenAlex OpenCitations
  4. Gregory P. Hanley (2010). Toward Effective and Preferred Programming: A Case for the Objective Measurement of Social Validity with Recipients of Behavior-Change Programs . Behavior Analysis in Practice, 3(1), 13-21. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/bf03391754 OpenAlex: https://openalex.org/W1596757121
    Crossref OpenAlex OpenCitations
  5. Elizabeth Barnes (2016). The Minority Body . Oxford University PressOxford.
    Type: Book DOI: 10.1093/acprof:oso/9780198732587.001.0001 OpenAlex: https://openalex.org/W2481966794
    Crossref OpenAlex OpenCitations
  6. Laura Hull , K.V. Petrides , C. Allison , P. Smith , S. Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3166-5 OpenAlex: https://openalex.org/W2616560149
    Crossref OpenAlex OpenCitations
  7. Jacqueline N. Potter , Gregory P. Hanley , Matotopa Augustine , Casey J. Clay , Meredith C. Phelps (2013). TREATING STEREOTYPY IN ADOLESCENTS DIAGNOSED WITH AUTISM BY REFINING THE TACTIC OF “USING STEREOTYPY AS REINFORCEMENT” . Journal of Applied Behavior Analysis, 46(2), 407-423. Wiley.
    Type: Article DOI: 10.1002/jaba.52 OpenAlex: https://openalex.org/W1899998037
    Crossref OpenAlex OpenCitations
  8. (n.d.). Behavior Analyst Certification Board. 2020. Ethics Code for Behavior Analysts. https://bacb.com/wp-content/ethics-code-for-behavior-analysts .
    Type: Other
    Crossref
  10. Regina A. Carroll , Claire C. St. Peter (2014). Methods for Assessing Social Validity of Behavioral Intervention Plans for Children with Attention Deficit Hyperactivity Disorder11We would like to thank Jennie Cox and Kara Samaj for their assistance with various aspects of data collection . Acta de Investigación Psicológica, 4(3), 1642-1656. Universidad Nacional Autonoma de Mexico.
    Type: Article DOI: 10.1016/s2007-4719(14)70971-8 OpenAlex: https://openalex.org/W1963084406
    Crossref OpenAlex OpenCitations
  11. (n.d.). Behavior Analyst Certification Board. 2022. BACB certificant data. https://www.bacb.com/BACB-certificant-data/ . Accessed 3 Sept 2022.
    Type: Other
    Crossref
  12. Karola Dillenburger , Mickey Keenan (2009). None of the As in ABA stand for autism: Dispelling the myths . Journal of Intellectual & Developmental Disability, 34(2), 193-195. Informa UK Limited.
    Type: Article DOI: 10.1080/13668250902845244 OpenAlex: https://openalex.org/W2040223649
    Crossref OpenAlex OpenCitations
  13. Steve Holburn (2002). How Science Can Evaluate and Enhance Person-Centered Planning . Research and Practice for Persons with Severe Disabilities, 27(4), 250-260. SAGE Publications.
    Type: Article DOI: 10.2511/rpsd.27.4.250 OpenAlex: https://openalex.org/W1971123978
    Crossref OpenAlex OpenCitations
  14. Ann Beirne , Jacob A. Sadavoy (2021). Understanding Ethics in Applied Behavior Analysis . Routledge.
    Type: Book DOI: 10.4324/9781003190707 OpenAlex: https://openalex.org/W4200000639
    Crossref OpenAlex OpenCitations
  15. Timothy A. Slocum , Ronnie Detrich , Susan M. Wilczynski , Trina D. Spencer , Teri Lewis , Katie Wolfe (2014). The Evidence-Based Practice of Applied Behavior Analysis . The Behavior Analyst, 37(1), 41-56. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40614-014-0005-2 OpenAlex: https://openalex.org/W1975202106
    Crossref OpenAlex OpenCitations
  17. Sally Lindsay , Kristina Fuentes , Sharmigaa Ragunathan , Luiza Lamaj , Jaclyn Dyson (2023). Ableism within health care professions: a systematic review of the experiences and impact of discrimination against health care providers with disabilities . Disability and Rehabilitation, 45(17), 2715-2731. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2022.2107086 OpenAlex: https://openalex.org/W4290694751
    Crossref OpenAlex OpenCitations
  18. Alan E. Kazdin (1977). Assessing the Clinical or Applied Importance of Behavior Change through Social Validation . Behavior Modification, 1(4), 427-452. SAGE Publications.
    Type: Article DOI: 10.1177/014544557714001 OpenAlex: https://openalex.org/W1977842618
    Crossref OpenAlex OpenCitations
  19. Louise Bradley , Rebecca Shaw , S. Baron-Cohen , Sarah Cassidy (2021). Autistic Adults' Experiences of Camouflaging and Its Perceived Impact on Mental Health . Autism in Adulthood, 3(4), 320-329. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.0071 OpenAlex: https://openalex.org/W3170765972
    Crossref OpenAlex OpenCitations
  20. Montrose M. Wolf (1978). SOCIAL VALIDITY: THE CASE FOR SUBJECTIVE MEASUREMENT or HOW APPLIED BEHAVIOR ANALYSIS IS FINDING ITS HEART 1 . Journal of Applied Behavior Analysis, 11(2), 203-214. Wiley.
    Type: Article DOI: 10.1901/jaba.1978.11-203 OpenAlex: https://openalex.org/W2020279449
    Crossref OpenAlex OpenCitations
  21. Simon M. Bury , Rachel Jellett , Jennifer R. Spoor , Darren Hedley (2023). “It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer? Journal of Autism and Developmental Disorders, 53(2), 677-687. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04425-3 OpenAlex: https://openalex.org/W3007056653
    Crossref OpenAlex OpenCitations
  22. Devon Ramey , Olive Healy , Emma McEnaney (2023). Defining and Measuring Indices of Happiness and Unhappiness in Children Diagnosed with Autism Spectrum Disorder . Behavior Analysis in Practice, 16(1), 194-209. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40617-022-00710-y OpenAlex: https://openalex.org/W4223574067
    Crossref OpenAlex OpenCitations
  23. James E. Carr , Jennifer L. Austin , Lisa N. Britton , Karen Kate Kellum , Jon S. Bailey (1999). An assessment of social validity trends in applied behavior analysis . Behavioral Interventions, 14(4), 223-231. Wiley.
    Type: Article DOI: 10.1002/(sici)1099-078x(199910/12)14:4<223::aid-bin37>3.0.co;2-y OpenAlex: https://openalex.org/W2115316381
    Crossref OpenAlex OpenCitations
  24. Adithyan Rajaraman , Gregory P. Hanley , Holly C. Gover , Johanna L. Staubitz , John E. Staubitz , Kathleen M. Simcoe et al. (2022). Minimizing Escalation by Treating Dangerous Problem Behavior Within an Enhanced Choice Model . Behavior Analysis in Practice, 15(1), 219-242. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40617-020-00548-2 OpenAlex: https://openalex.org/W3159873915
    Crossref OpenAlex OpenCitations
  25. Liz Gill , Lesley White (2009). A critical review of patient satisfaction . Leadership in Health Services, 22(1), 8-19. Emerald.
    Type: Article DOI: 10.1108/17511870910927994 OpenAlex: https://openalex.org/W2050918367
    Crossref OpenAlex OpenCitations
  26. Amanda C. Nicolson , Junelyn F. Lazo-Pearson , Jackie Shandy (2020). ABA Finding Its Heart During a Pandemic: An Exploration in Social Validity . Behavior Analysis in Practice, 13(4), 757-766. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40617-020-00517-9 OpenAlex: https://openalex.org/W3093052979
    Crossref OpenAlex OpenCitations
  27. Ilene Schwartz (1991). THE STUDY OF CONSUMER BEHAVIOR AND SOCIAL VALIDITY: AN ESSENTIAL PARTNERSHIP FOR APPLIED BEHAVIOR ANALYSIS . Journal of Applied Behavior Analysis, 24(2), 241-244. Wiley.
    Type: Article DOI: 10.1901/jaba.1991.24-241 OpenAlex: https://openalex.org/W2068763350
    Crossref OpenAlex OpenCitations
  28. (n.d.). Centers for Disease Control and Prevention. 2022. Communicating with and about people with disabilities. https://www.cdc.gov/ncbddd/disabilityandhealth/materials/factsheets/fs-communicating-with-people.html . Accessed 12 Apr 2024.
    Type: Other
    Crossref
  29. Linda A. LeBlanc , Melissa R. Nosik , Anna Petursdottir (2018). Establishing Consumer Protections for Research in Human Service Agencies . Behavior Analysis in Practice, 11(4), 445-455. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40617-018-0206-3 OpenAlex: https://openalex.org/W2796961390
    Crossref OpenAlex OpenCitations
  30. Alexander Chaitoff , Bob Sun , Amy Windover , Daniel Bokar , Joseph Featherall , Michael B. Rothberg et al. (2017). Associations Between Physician Empathy, Physician Characteristics, and Standardized Measures of Patient Experience . Academic Medicine, 92(10), 1464-1471. Oxford University Press (OUP).
    Type: Article DOI: 10.1097/acm.0000000000001671 OpenAlex: https://openalex.org/W2605366580
    Crossref OpenAlex OpenCitations
  31. Julia Cook , Laura Crane , Laura Hull , Laura Bourne , William Mandy (2022). Self-reported camouflaging behaviours used by autistic adults during everyday social interactions . Autism, 26(2), 406-421. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211026754 OpenAlex: https://openalex.org/W3175040857
    Crossref OpenAlex OpenCitations
  32. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315588200 OpenAlex: https://openalex.org/W2227393071
    Crossref OpenAlex OpenCitations
  33. Dorothea C. Lerman , Laura R. Addison , Tiffany Kodak (2006). A PRELIMINARY ANALYSIS OF SELF‐CONTROL WITH AVERSIVE EVENTS: THE EFFECTS OF TASK MAGNITUDE AND DELAY ON THE CHOICES OF CHILDREN WITH AUTISM . Journal of Applied Behavior Analysis, 39(2), 227-232. Wiley.
    Type: Article DOI: 10.1901/jaba.2006.90-05 OpenAlex: https://openalex.org/W2164174757
    Crossref OpenAlex OpenCitations
  35. Sarah K. Slocum , Jeffrey H. Tiger (2011). AN ASSESSMENT OF THE EFFICIENCY OF AND CHILD PREFERENCE FOR FORWARD AND BACKWARD CHAINING . Journal of Applied Behavior Analysis, 44(4), 793-805. Wiley.
    Type: Article DOI: 10.1901/jaba.2011.44-793 OpenAlex: https://openalex.org/W2168598786
    Crossref OpenAlex OpenCitations
  36. Dana S. Dunn , Erin E. Andrews (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255-264. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0038636 OpenAlex: https://openalex.org/W2332517055
    Crossref OpenAlex OpenCitations
  37. O. Ivar Lovaas (1987). Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of Consulting and Clinical Psychology, 55(1), 3-9. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0022-006x.55.1.3 OpenAlex: https://openalex.org/W4234561288
    Crossref OpenAlex OpenCitations
  38. Shane Sinclair , Jill M. Norris , Shelagh J. McConnell , Harvey Max Chochinov , Thomas F. Hack , Neil A. Hagen et al. (2016). Compassion: a scoping review of the healthcare literature . BMC Palliative Care, 15(1), 6-6. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12904-016-0080-0 OpenAlex: https://openalex.org/W2252958645
    Crossref OpenAlex OpenCitations
  39. Julia L. Ferguson , Joseph H. Cihon , Justin B. Leaf , Sarah M. Van Meter , John McEachin , Ronald Leaf (2019). Assessment of social validity trends in the journal of applied behavior analysis . European Journal of Behavior Analysis, 20(1), 146-157. Informa UK Limited.
    Type: Article DOI: 10.1080/15021149.2018.1534771 OpenAlex: https://openalex.org/W2897198286
    Crossref OpenAlex OpenCitations
  40. Yann B. Ferrand , Jennifer Siemens , Danny Weathers , Lawrence D. Fredendall , Yunsik Choi , Ronald G. Pirrallo et al. (2016). Patient Satisfaction With Healthcare Services A Critical Review . Quality Management Journal, 23(4), 6-22. Informa UK Limited.
    Type: Article DOI: 10.1080/10686967.2016.11918486 OpenAlex: https://openalex.org/W2540254695
    Crossref OpenAlex OpenCitations
  41. G Fouka (2011). Fouka, Georgia, and Marianna Mantzorou. 2011. What are the major ethical issues in conducting research? Is there a conflict between the research ethics and the nature of nursing? Health Science Journal 5 (1): 3–14. Health Science Journal, 5(1), 3.
    Type: Other
    Crossref
  42. Abraham David Graber , Jessica Graber (2023). Applied Behavior Analysis and the Abolitionist Neurodiversity Critique: An Ethical Analysis . Behavior Analysis in Practice, 16(4), 921-937. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40617-023-00780-6 OpenAlex: https://openalex.org/W4322766838
    Crossref OpenAlex OpenCitations
  43. Olena Mazurenko , Taleah Collum , Alva Ferdinand , Nir Menachemi (2017). Predictors of Hospital Patient Satisfaction as Measured by HCAHPS . Journal of Healthcare Management, 62(4), 272-283. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/jhm-d-15-00050 OpenAlex: https://openalex.org/W2773080801
    Crossref OpenAlex OpenCitations
  44. Dominic A. Trevisan , Nicole Roberts , Cathy Lin , Elina Birmingham (2017). How do adults and teens with self-declared Autism Spectrum Disorder experience eye contact? A qualitative analysis of first-hand accounts . PLOS ONE, 12(11), e0188446. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0188446 OpenAlex: https://openalex.org/W2769098086
    Crossref OpenAlex OpenCitations
  45. J Henrich (2010). Henrich, Joseph, Steven J. Heine, and Ara Norenzayan. 2010. Beyond WEIRD: Towards a broad-based behavioral science. Behavioral and Brain Sciences 33 (2–3): 111–135. https://doi.org/10 . 1017/s0140525x1000072. Behavioral and Brain Sciences, 33(2–3), 111.
    Type: Other DOI: 10.1017/s0140525x1000072
    Crossref
  46. Johanna L. Staubitz , John E. Staubitz , Marney S. Pollack , Rachel A. Haws , Michelle Hopton , Rachel A. Haws et al. (2022). Effects of an enhanced choice model of skill‐based treatment for students with emotional/behavioral disorders . Journal of Applied Behavior Analysis, 55(4), 1306-1341. Wiley.
    Type: Article DOI: 10.1002/jaba.952 OpenAlex: https://openalex.org/W4295907570
    Crossref OpenAlex OpenCitations
  47. Amanda Taboas , Karla Doepke , Corinne Zimmerman (2023). Preferences for identity-first versus person-first language in a US sample of autism stakeholders . Autism, 27(2), 565-570. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221130845 OpenAlex: https://openalex.org/W4306157884
    Crossref OpenAlex OpenCitations
  48. (n.d.). Holburn, Steve, Anne Gordon, and Peter Vietze. 2007. Person-Centered Planning Made Easy: The PICTURE Method. Baltimore: Brookes Pub.
    Type: Other
    Crossref
  49. Stephanie M. Peterson , Elian Aljadeff-Abergel , Rebecca R. Eldridge , Nathan J. VanderWeele , Nicholas S. Acker (2021). Conceptualizing Self-determination from a Behavioral Perspective: The Role of Choice, Self-control, and Self-management . Journal of Behavioral Education, 30(2), 299-318. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10864-020-09368-4 OpenAlex: https://openalex.org/W3005353657
    Crossref OpenAlex OpenCitations
  50. Cody Morris , Jessica J. Detrick , Stephanie M. Peterson (2021). Participant assent in behavior analytic research: Considerations for participants with autism and developmental disabilities . Journal of Applied Behavior Analysis, 54(4), 1300-1316. Wiley.
    Type: Article DOI: 10.1002/jaba.859 OpenAlex: https://openalex.org/W3170948399
    Crossref OpenAlex OpenCitations
  51. (n.d.). Kieny, Marie-Paule, Timothy G. Evans, Stefano Scarpetta, Edward T. Kelley, Niek Klazinga, Ian Forde, Jeremy H. Veillard, Maurice Henri, Sheila Leatherman, Shamsuzzoha Syed, Su Mean Kim, Sepidek Bagheri Nejad, and Laim Donaldson. 2018. Delivering quality health services: A global imperative for universal health coverage (English). Washington, D. C.: World Bank Group. http://documents.worldbank.org/curated/en/482771530290792652/Delivering-quality-health-services-a-global-imperative-for-universal-health-coverage .
    Type: Other
    Crossref
  52. Michael Wehmeyer (2011). Arc's Self Determination Scale . PsycTESTS Dataset. American Psychological Association (APA).
    Type: Dataset DOI: 10.1037/t03340-000 OpenAlex: https://openalex.org/W4231036350
    Crossref OpenAlex OpenCitations
  53. Patrick Oben , Mandy Corliss (2021). The Difference Between HCAHPS and the Patient Experience and its Implications for Physicians, Experience Leaders, and Health Executives . Journal of Patient Experience, 8, 23743735211034026-23743735211034026. SAGE Publications.
    Type: Article DOI: 10.1177/23743735211034026 OpenAlex: https://openalex.org/W3185864158
    Crossref OpenAlex OpenCitations
  54. (n.d.). Organization for Autism Research. 2020. 1,000 people surveyed, survey says… https://researchautism.org/oaracle-newsletter/1000-people-surveyed-survey-says/ . Accessed 12 Apr 2024.
    Type: Other
    Crossref
  55. Kelly Macy , Wouter Staal , Cate Kraper , Amanda Steiner , Trina D. Spencer , Lydia Kruse et al. (2013). Behavior Analyst Certification Board . In Encyclopedia of Autism Spectrum Disorders (pp. 409-410). Springer New York.
    Type: Book chapter DOI: 10.1007/978-1-4419-1698-3_1127 OpenAlex: https://openalex.org/W4235589136
    OpenAlex
  56. (2020). Health Science Journal . Insight Medical Publishing.
    Type: Other DOI: 10.36648/1791-809x OpenAlex: https://openalex.org/W4238378607
    OpenAlex
  57. CM Williams (2021). A Scientific framework for compassion and social justice: lessons in applied behavior analysis . A Scientific framework for compassion and social justice: lessons in applied behavior analysis, 89.
    Type: Other
    Crossref