Ambitious about co-production
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerNiner, E. & Portman, K. (2021). Ambitious about co-production. In COVID-19 and Co-production in Health and Social Care Research, Policy, and Practice (pp. 43-50). Policy Press. https://doi.org/10.56687/9781447361794-007 · ISBN : 9781447361794
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Abstract
Before the pandemic, as a community, four out of five autistic young people had a mental health condition (Crane, 2017), and as many as 79% of autistic people and 70% of their families felt socially isolated (National Autistic Society, 2016). 82% of young autistic people believed they spent less time socialising than their non-autistic peers (Crane, 2017) and formal exclusions of autistic pupils have risen by 60% in the last five years (Ambitious about Autism, 2018). These statistics were already unacceptable. However, the pandemic has exacerbated these inequalities, and autistic young people are suffering. Routines and coping strategies have had to be abandoned, appointments rescheduled, or indefinitely postponed, and the unknown reigns supreme. Based on the survey we, Ambitious about Autism (https://www.ambitiousaboutautism.org.uk/about-us), conducted during the pandemic, nearly two thirds (63%) of autistic children and young people report that their mental health is worse than before the outbreak of COVID-19. Three quarters of respondents (75%) said they felt more anxious since the pandemic began and over half described feeling stressed (56%) and overwhelmed (54%). At a time when there are already long waiting lists for support services, three quarters of respondents think that they will need ongoing support for anxiety or mental health issues following the pandemic. Unfortunately, we also know that 76% of autistic people feel their doctor does not make changes to meet their needs (Westminster Commission on Autism, 2016) and one of the leading causes of death in the autistic community is suicide. Therefore, action must be taken. The participation team at Ambitious about Autism have been working for many years with autistic young people across England to amplify their voices and support them to influence change on topics that matter to them.
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These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 28 Oct 2026 01:01.
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Laura Crane , Fern Adams *Autistic author. Learn more… , Georgia Harper *Autistic author. Learn more… , Jack Welch *Autistic author. Learn more… , Elizabeth Pellicano (2017). Know your normal: mental health in young autistic adults . Know your normal: Mental health in young autistic adults.Type: Article OpenAlex: https://openalex.org/W2898929728OpenAlex
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Anita Stronge (2021). Ambitious About Autism .Type: Article OpenAlex: https://openalex.org/W3140287660OpenAlex