Anticipatory grief and bereavement: the perspective of an individual with autism

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Barber, C. (2022). Anticipatory grief and bereavement: the perspective of an individual with autism. British Journal of Community Nursing, 27(8), 378-383. https://doi.org/10.12968/bjcn.2022.27.8.378

Publication date: 2 Aug 2022 Added to AutiHub: 7 Sep 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
1
Publication authors identified as autistic
1 / 1 (100.0%)

Abstract

Much has been written around the meaning and impact of grief and grieving on people's lives following the death of a person, and anticipatory grief/grieving is receiving increased attention in nursing and healthcare. However, the impact of anticipatory grief on an autistic male adult has received far less research exposure than that of neurotypical (non-autistic) adults. This article, ‘written’ in the form of a letter by the author to community nurses, seeks to address this. The intention is to initiate reflective discussions around anticipatory grief and grieving, as current and future support will be stimulated on the part of community nurses through dialogue between those on the autistic spectrum and community nurses. Ultimately, the aim of this article is to help improve the support provided by community nurses to autistic individuals.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 12 Sep 2026 01:04.

Cited references
10
With a DOI
1
Without a DOI, from raw bibliography text
9
0 / 10 (0.0%) cited references include at least one author identified as autistic.
References with data to complete
7 / 10 (70.0%)
References with detected author names
4 / 10 (40.0%)
Without detected author names
6
Without a structured title
7
Without a stable identifier
9
References with raw author names still to review
6
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
6
From DOI or external metadata
6
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
8
0 / 6 (0.0%) names are linked to an author already present in AutiHub. 6 / 6 (100.0%) names are not yet linked.
Names linked to a person identified as autistic
0 / 6 (0.0%)
Calculated across all author names detected in the cited bibliography. No detected author names are currently linked to an author already present in AutiHub. Distinct people identified as autistic: 0 / 6 (0.0%).
  1. Nicki Thorp , Jacqui Stedmon , Helen Lloyd (2018). “I carry her in my heart”: An exploration of the experience of bereavement for people with learning disability . British Journal of Learning Disabilities, 46(1), 45-53. Wiley.
    Crossref OpenAlex OpenCitations
  2. (n.d.). Barber C. Autism and Asperger's conditions: a practical guide for nurses. London, Quay Books. 2011
    Type: Other
    Crossref
  3. Coad J (2006). B9 Nursing times, 102(50), 35.
    Type: Other
    Crossref
  4. Gaventa W (2010). End-of-life care . End-of-life care.
    Type: Other
    Crossref
  5. (n.d.). Kubler-Ross E, Kessler D. On grief and grieving: finding the meaning of grief. London; Simon & Schuster. 2014
    Type: Other
    Crossref
  6. (n.d.). Parkes C, Prigerson H. Bereavement: studies of grief in adult life. 4th edn. London: Penguin; 2010
    Type: Other
    Crossref
  7. (n.d.). Purkis Y. The autism and neurodiversity self advocacy handbook: developing the skills to determine your own future. London: Jessica Kingsley Publishers; 2022
    Type: Other
    Crossref
  8. (n.d.). Wing L. The autism spectrum. 2nd edn. London, Robinson. 2012.
    Type: Other
    Crossref
  9. Winter P (2012). Loud hands: autistic people, speaking . Loud hands: autistic people, speaking, 115.
    Type: Other
    Crossref
  10. (n.d.). Yoshida Y. How to be yourself in a world that's different. London: Jessica Kingsley Publishers; 2008
    Type: Other
    Crossref