Commentary on “Thinking differently? Autism and quality of life”
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerWaldock, K. E. (2019). Commentary on “Thinking differently? Autism and quality of life”. Tizard Learning Disability Review, 24(2), 77-81. https://doi.org/10.1108/tldr-02-2019-0006
This publication is integrated into AutiHub through:
Authors
Abstract
Purpose The purpose of this paper is to describe the possible impact of normalisation on the perceptions of quality of life (QoL) and the impact of this association on the research to date. This commentary reflects on the implications of limiting QoL research to autistic people who are perceived to be “more able”. Design/methodology/approach This commentary discusses the implications of undertaking QoL research in the field of autism. Findings This commentary argues for further consideration of the autistic voice in QoL research. Researcher epistemology and life experience, including experience of autistic people, is examined in terms of how QoL might be perceived and attributed. Further participatory research in the field of quality of life of autistic people, including those with a learning disability and engagement with a variety of autistic people, is called for. Originality/value This commentary suggests that the existing definitions of QoL, founded on principles of normalisation, may not be completely applicable to autistic people, and that new ways of both defining and measuring QoL might be needed.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Cited bibliography overview
These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 14:04.
- With a DOI
- 10
- Without a DOI, from raw bibliography text
- 13
- References with detected author names
- 16 / 25 (64.0%)
- Without detected author names
- 9
- Without a structured title
- 0
- Without a stable identifier
- 11
- References with raw author names still to review
- 0
- References with external metadata lookup issues
- 0
- From DOI or external metadata
- 41
- From validated raw bibliography text
- 0
- Raw names already validated
- 0
- Raw names still to review
- 0
-
Housing Lin (2009). Valuing people now: a new three-year strategy for people with learning disabilities .Type: Article OpenAlex: https://openalex.org/W1608805108OpenAlex
-
Nicholas Chown *Autistic author. Learn more… , Jackie Robinson , Luke Beardon , Jillian Downing , Elizabeth Hughes *Autistic author. Learn more… , Julia Leatherland *Autistic author. Learn more… et al. (2017). Improving research about us, with us: a draft framework for inclusive autism research . Disability & Society, 32(5), 720-734. Informa UK Limited.AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
-
So Yoon Kim (2019). The experiences of adults with autism spectrum disorder: Self-determination and quality of life . Research in Autism Spectrum Disorders, 60, 1-15. Elsevier BV.Crossref OpenAlex OpenCitations
-
Damian Milton *Autistic author. Learn more… , Lyte Moon (2012). The normalisation agenda and the psycho-emotional disablement of autistic people. Autonomy Crit. J. Interdiscip. Autism Stud., 1(1), 1.Type: Article OpenAlex: https://openalex.org/W1892279485Crossref OpenAlex
-
(1997). Comprehensive Quality of Life Scale- Intellectual/Cognitive Disability . Comprehensive Quality of Life Scale- Intellectual/Cognitive Disability.Type: OtherCrossref
-
A. Verri , R. A. Cummins , F. Petito , E. Vallero , S. Monteath , E. Gerosa et al. (1999). An Italian–Australian comparison of quality of life among people with intellectual disability living in the community . Journal of Intellectual Disability Research, 43(6), 513-522. Wiley.Crossref OpenAlex OpenCitations
-
Damian Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.
-
Department of Health (2009). Valuing People Now: A New Three Year Strategy for People with Learning Disabilities . Valuing People Now: A New Three Year Strategy for People with Learning Disabilities.Type: OtherCrossref
-
Scott Robertson *Autistic author. Learn more… (2009). Neurodiversity, Quality of Life, and Autistic Adults: Shifting Research and Professional Focuses onto Real-Life Challenges . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
-
Jan Walmsley (2001). Normalisation, Emancipatory Research and Inclusive Research in Learning Disability . Disability & Society, 16(2), 187-205. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Department of Health (2014). Think Autism: An update to the government adult autism strategy . Think Autism: An Update to the Government Adult Autism Strategy.Type: OtherCrossref
-
J. A. McGillivray , A. L. D. Lau , R. A. Cummins , G. Davey (2009). The Utility of the Personal Wellbeing Index Intellectual Disability Scale in an Australian Sample . Journal of Applied Research in Intellectual Disabilities, 22(3), 276-286. Wiley.Crossref OpenAlex OpenCitations
-
(1961). Asylums: Essays on the Social Situation of Mental Patients and other Inmates . Asylums: Essays on the Social Situation of Mental Patients and other Inmates.Type: OtherCrossref
-
(1963). Stigma: Notes on the Management of Spoiled Identity . Stigma: Notes on the Management of Spoiled Identity.Type: OtherCrossref
-
Barbara FC van Heijst , Hilde M. Geurts (2015). Quality of life in autism across the lifespan: A meta-analysis . Autism, 19(2), 158-167. SAGE Publications.Crossref OpenAlex OpenCitations
-
Jenna Johnson , Roy Hanes (2018). Exploring the Social Experience of Adults on the Autism Spectrum: Views on Friendships, Dating and Partnerships . Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(5).Type: Article OpenAlex: https://openalex.org/W2803621873Crossref OpenAlex
-
Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.Crossref OpenAlex OpenCitations
-
Susan E. Szivos‐Bach (1993). SOCIAL COMPARISONS, STIGMA AND MAINSTREAMING: THE SELF ESTEEM OF YOUNG ADULTS WITH A MILD MENTAL HANDICAP . Mental Handicap Research, 6(3), 217-236. Wiley.Crossref OpenAlex OpenCitations
-
Bengt Nirje (1994). The Normalization Principle and Its Human Management Implications .Type: Article OpenAlex: https://openalex.org/W2187557143OpenAlex
-
(2012). So what exactly is autism?Type: OtherCrossref
-
(2008). Conducting qualitative research with people with learning, communication and other disabilities: methodological challenges .Type: OtherCrossref
-
(1969). The normalization principle and its human management implications . Changing Patterns in Residential Services for the Mentally Retarded, 179.Type: OtherCrossref
-
(2018). An exploratory study of attitudes towards autism among church-going Christians in four protestant churches in the South East of England .Type: OtherCrossref
-
(2018). Some of the challenges associated with offering ‘talking’ psychological therapies to autistic people and potential solutions .Type: OtherCrossref
-
(1996). Autism–an Inside-out Approach: An Innovative Look at the Mechanics of “Autism” and its Developmental “Cousins” . Autism–an Inside-out Approach: An Innovative Look at the Mechanics of “Autism” and its Developmental “Cousins”.Type: OtherCrossref